- Tommy Smith, Quadruple Amputee-resulting from
bacterial meningitis
To me, the Disability Project means family and friends.
The DP provides a comfortable, nonjudgmental environment where I
am not afraid to be myself. It allows me to have fun and act with
a wonderful group of people who are honest and open. To me, the
DP is a community.
- Rachel Sieber, Second year occupational therapy
student, Washington University School of Medicine, Program in Occupational
Therapy
Working with The Disability Project gives me the
opportunity to flesh out ideas that deal with poetic physical metaphors.
It's a chance to sharpen my skills as a teacher and director, teaches
me valuable lessons in choosing words carefully and allows me to
share my creativity with a very receptive group of performers.
- Karen Werner, Choreographer
I am Thea de Luna. I've been with the group about
two years. The group has meant a lot to me in its effects on my
life both as stroke survivor and as tool for change. I had a cerebral
hemorrhage nine years ago Christmas day, at thirty-five years of
age. It has been a learning experience. I went from not being able
to hold up my head in a chair and now I am much improved. Still
not what I was, I’ve been able to educate myself and others about
disabilities, and to maybe change for the better the living conditions
and access for others.
- Thea de Luna, Stroke Survivor
Originally, it meant just an opportunity to create
some theater with a woman who was nationally known in performance
art circles. I wasn't necessarily attracted to or repulsed by the
subject matter of the theater we would be creating, just interested
in getting some acting experience. Of course, it has come to mean
much more to me. It has raised my consciousness in a way that I
was not aware needed raising. It has helped me to lose my fear of
disability. It has made me realize that we can handle whatever God
has given us. It's taught me that we can not only survive calamity
but thrive as well. I hope it's made me a more sympathetic and empathetic
human being. And it's given me lots of theater acting and writing
experience!
- Rich Scharf
The DisAbility Project has enabled me to do what
I love: performing. My younger years were filled with live theater
experiences. An auto accident in 1990 put me on wheels. I rolled
into my first rehearsal with the Project and felt right at home.
- Katie Rodriguez Banister, Quadriplegia
For me, the DP is a group of friends getting together
for laughs and to create art--and by the way, we also promote advocacy
for the disabled and create awareness and education for those not
familiar with the culture of disability or those who may be disabled.
The DP offers something that no other group offers: unconditional
acceptance. Being with my pals in the group uplifts me, even when
I'm having the worst of days. We laugh, we cry, we create awareness.
I volunteered with the DP because of my love of theater...I stay
with the group because of my love for what we do, who we are and
what we stand for.
- Melissa Humbarger
The Disability Project has given me a chance to
let down my defenses within the safety of accepting and supportive
friends. Our performances give me a chance to express myself
without having to struggle to find the right words. I look forward
to our meetings and our performances. The Disability Project is
helping me to let go of my fears and open up to others. It brings
much joy into my life and has given me friends with whom I can be
myself.
- Tom Allen, Epileptic and Partially Blind
Being a member of the DisAbility Project these last
four years has changed my life. It has offered me the opportunity
for self-expression; a creative forum in which to have my message
heard. Performing tickles my sense of humor, and sparks my joy in
being before an audience. Also, group members fill me socially with
safety, friendship and love.
- Stuart Falk, Multiple Sclerosis
What has the disability project meant to me? Where
to even begin? I'm an academic, and used to having to craft analyses
and theses all day long. So instead, I'm going to indulge here in
one of the first things I learned from the DP: it's ok to play with
a "disability aesthetic," to not do things in the way
they are always done, to not immediately synthesize and analyze.
Rather, let me give you a collage of the many things the Project
has brought into my life, in a fragmented, disabled, joyful jumble.
And they're listed in no particular order.
*The joy of friendships with people in the St. Louis
community who make me see through their passion, their integrity,
and their acceptance that humanity is good and people are fierce
(in the best sense of the word).
*The ability to see my own body (a body that wears
size 22, and that more often than not I hate rather than love) as
having in common with disabled bodies the condition of being "extraordinary."
Not less, not freakish, not excessive, not transgressive...but different.
And in their difference, representing a way of experiencing the
world and being in the world different from the idealized norms
the world insists upon.
*I've learned that disability is a culture with
a rich history and a vibrant present.
*I've remembered that art, and specifically theatre,
can continue to have a power for actors and performers in an age
when mass media (for all its wonderful junkiness) can sometimes
seem too insipid or all pervasive.
*I've learned that my own personal and academic
feminism can stretch and grow, can continue to be challenged. I've
learned that feminist thought doesn't just relate to issues of race,
gender, age, and sexuality, but also to disability--and that it
cuts across those other categories.
*I've learned that there's a whole field of scholars
who do this amazing thing called "disability studies"
that is an intellectual pursuit of many of the questions the disability
project raises about normalcy.
*I've learned that sometimes, you can leave the
words behind, and say something just as--if not more--powerful through
the visuals of theatre.
- Ann Fox, Assistant Professor, Davidson College
Love, understanding, and compassion are unique to
the DisAbility Project. The DisAbility Project is family to me.
- LaRoy Smith, Multiple Sclerosis
It has been a wonderful experience working with
The DisAbility Project as a choreographer. In the past, I have worked
exclusively with able bodied, usually trained dancers. Working with
this group has allowed me to explore completely new movement vocabularies.
Besides, what a terrific group of people they are. The DP always
leaves me inspired.
- F. Reed Brown, Choreographer
Wow, how can I talk about the Disability Project
in only one paragraph? I’ve been involved in the arts since the
wee years of my life. Never have I, until I first experienced the
amazing work of the DisAbility Project about two years ago, learned
that anything is possible on stage. It has opened my eyes to see
that even though I have a disability, it doesn’t have to be the
focus on stage. When I was younger, I was known as the "girl
in the wheelchair." People didn’t notice the person
sitting in the chair, the little girl with a heart. I perform with
people I consider family. We mix education, advocacy, and the endless
possibilities of theatre.
- Alison Marie Chancellor, Cerebral Palsy since
birth
When I was 19 years old, my mother convinced me
to get my eyes examined. I had been complaining about not being
able to see road signs at night or recognize faces from a distance.
I thought, "my eyes may not be perfect, but I'm functioning
just fine". But, I went anyway. They switched these lenses
back and forth over each eye while I told them which one looked
best. Then they made me a pair of glasses and brought them out to
me. Miraculous! I put them on and looked out into the mall. Signs
had individual letters on them, people's faces were up close, and
everything had definition!! This vivid world had always existed,
but I was blind to it. I didn't know what I was missing.
Like new lenses, my involvement with DP has given
me an invaluable outlook on the world as it truly exists for a large
population of people. Shouldn't we strive to know what this earthly
experience is like for all people? By doing so, we expand our understanding
and our very souls.
- Wendy Weight
As an Occupational Therapist, involved in the DisAbility
Project since its' inception, I have always been profoundly interested
in the use of meaningful activities, to engage and motivate people
with disabilities to reach their full potential. The DisAbility
project is just such a unique activity. In a natural and uncontrived
way, it helps the participants learn to take risks and experiment
more. It helps them feel good about themselves because they are
doing something constructive to help change perceptions about disability.
I have observed the group, in the process of performing;
gaining confidence, poise, self- assurance, and the ability to work
as a team member. Participants have become less reticent, more willing
to share themselves and their feelings. Performing for and interacting
with large audiences has enabled them to more easily interact socially
in other situations. The bonding that has occurred with the DP ensemble
has helped members to form relationships with others. Learning lines
and rehearsing scenes has helped those with cognitive and focusing
problems. The DisAbility project is a powerful tool for enriching
the lives of the participants and all disabled people as well as
changing societal perceptions about disability.
- Fran Cohen, BS, MS. Retired faculty, Washington
University Program in Occupational Therapy, colleague and co-founder.
What People Are Saying ...
Audiences
~ Educators
~ Participants